Sunday 17 May 2015

Catch up

It has been pointed out to me that I have not written anything lately so here goes.

There are no big breakthroughs to report (worse luck) but lots of little improvements for which we are very grateful.  Ron can now get into bed and out of bed on his own and since last Tuesday he now gets onto the stairlift on his own - it takes ages and I can hardly bear to watch so I go off and do something else as it is important that he does anything he can however difficult.

For the last two Tuesdays we have been lucky enough to have our physio Marion and Debbie an OT come to our house.  The reason for this is that the planned Group Sessions have had to be cancelled due to Norovirus at Herts and Essex Hospital.  This past Tuesday they tried to get Ron to walk into the bathroom from the stairlift.   He managed the walk in very well but had a very difficult time coming back to the stairlift.  He was too worried about the stairs on his right hand and just froze.  Consequently this put him back.  He did manage to walk from the door to the bed on Tuesday and Wednesday but by Thursday he had lost all confidence.  The OT admitted that the bathroom walk was a step too far and they perhaps should have started off with a less challenging task.  

For a short while we were lucky enough to have the Community OT - Ellie or Allie not quite sure which - come to the house to work with Ron.   She was very shocked to hear that we had waited 10 weeks for any official physio and then it was only fortnightly and she was willing to come weekly but  it seems professional protocol has got in the way as she said she would check with Marion and now we have not heard anything.

Next Tuesday should be the first Group Session and we ae waiting to see what that is like.

Ron has had a birthday since I last wrote and we went to Graham's  for a meal which was lovely and we were joined by Elliott which pleased Ron.


A couple of weeks ago we went to Lorraine's for the afternoon and then on to a Thai Restaurant for dinner.  Ron just about managed the front door and steps and we are going to try again today.

We have ordered an electric scooter, the type that can be put in the car, it has not arrived yet so I can't tell you whether Ron will be able to operate it with one hand.  Fingers crossed.

Not much else to report we lead a rather boring life.

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