Progress

Ron has made lots of progress this week.  On Tuesday the physio and OT came and enouraged Ron to walk from the chair lift to the bed and back again.  Since then he has not used the wheelchair to and from the bedroom.  In addition on Wednesday he walked to the bathroom and back to the chair lift,  this is really difficult for him and he has to overcome his fear of the stairs, it takes him ages to get through the doorway but he refuses to give in.  He really is so brave.   He has done this every day.   The physio will be amazed.

We went to Lorraine's last week and Ron managed the transfer from car to living room.  He did really well.   It has given us confidence to visit others.

The scooter has arrived and we used it for the first time yesterday when we went to visit Andrea.  We need more practice especially me but I think it will be fine in the end.

We have been busy in the garden 19 troughs have been planted up with african marigolds these line the wall that borders the drive up to the garage.  Three baskets planted up with million bells and begonias (saved from last year)
 

  

Catch up

It has been pointed out to me that I have not written anything lately so here goes.

There are no big breakthroughs to report (worse luck) but lots of little improvements for which we are very grateful.  Ron can now get into bed and out of bed on his own and since last Tuesday he now gets onto the stairlift on his own - it takes ages and I can hardly bear to watch so I go off and do something else as it is important that he does anything he can however difficult.

For the last two Tuesdays we have been lucky enough to have our physio Marion and Debbie an OT come to our house.  The reason for this is that the planned Group Sessions have had to be cancelled due to Norovirus at Herts and Essex Hospital.  This past Tuesday they tried to get Ron to walk into the bathroom from the stairlift.   He managed the walk in very well but had a very difficult time coming back to the stairlift.  He was too worried about the stairs on his right hand and just froze.  Consequently this put him back.  He did manage to walk from the door to the bed on Tuesday and Wednesday but by Thursday he had lost all confidence.  The OT admitted that the bathroom walk was a step too far and they perhaps should have started off with a less challenging task.  

For a short while we were lucky enough to have the Community OT - Ellie or Allie not quite sure which - come to the house to work with Ron.   She was very shocked to hear that we had waited 10 weeks for any official physio and then it was only fortnightly and she was willing to come weekly but  it seems professional protocol has got in the way as she said she would check with Marion and now we have not heard anything.

Next Tuesday should be the first Group Session and we ae waiting to see what that is like.

Ron has had a birthday since I last wrote and we went to Graham's  for a meal which was lovely and we were joined by Elliott which pleased Ron.


A couple of weeks ago we went to Lorraine's for the afternoon and then on to a Thai Restaurant for dinner.  Ron just about managed the front door and steps and we are going to try again today.

We have ordered an electric scooter, the type that can be put in the car, it has not arrived yet so I can't tell you whether Ron will be able to operate it with one hand.  Fingers crossed.

Not much else to report we lead a rather boring life.

Ups and Downs

Had a horribe day on Tuesday.  We turned up at the hospital for our physio appointment at 11.00 and the physio did not turn up until 12 but not to see us but another client.  She had no record of our appointment.  Well I know one thing she definitely made the appointment two week earlier because I always put it straight into my I-phone.   She said she thought our next appointment was for the group session which is to be on 5th May well this would have meant a three week wait for physion- not on, I think.   Ron was discharged from hospital on 7th January and since then we have had just 3 official physio appointments!!   I was so annoyed and upset I had to fight back the tears.

We went to The Nags Head for lunch to drown our sorrows (food, tea and diet coke).

We don't know how these group sessions are going to work out.  I am trying to stay positive.

Following our aborted physio session, Ron felt he had to work extra hard at home doing lots of walking and inevitably he had a fall.  I felt guilty because I think he was trying to cheer me up because I was so upset.   We had a job getting him up but eventually we managed.  No injuries thank goodness but of course another  blow to his confidence.

Today we had a visit from the Community OT and this was very positive.  She wants to come every week and work with Ron and she is also going to speak to the Community Physio as she thinks that she would be able to work alongside Marion.   The more input we get from professionals the better because this is what gives Ron the confidence in himself.

We have a busy weekend ahead, Lynda and Nigel are coming on Saturday and we are going to try and get in Lorraine's house on Monday and then we are all going for a meal at The Royal Tiger, a Thai Restaurant.