Tuesday 12 January 2016

Quick Update

I have to write this quick post as something wonderful has happened. Yesterday Ron moved his thumb.   Now this doesn't sound much but it is momentous.  He has not been able to repeat it but we know from experience that he will in the future.  It was the same with his feet and legs, he did something for the first time and then could not repeat it but he now does those movements almost without thinking.

The Papworth Physio came last Saturday and she was very good, Ron went for a walk outside, lots of different surfaces and slopes.   He did squats and is continuing to practice these.  On the advice of the physio we resumed using the mirror box on Sunday (could this have prompted the thumb movement?)

As I said just a short note - off to the gym in half-hour.

Wednesday 6 January 2016

Welcome 2016

We had a lovely Christmas.  Suzanne made a wonderful meal and 9 of us sat down at the beautifully laid table prepared by Chas with the help of a tape measure.   23 (I think) of us gathered at Graham and Erica's lovely home on Boxing Day to enjoy delicious food , supplied mainly by guests, loud music and some rowdy party games.

Between Christmas and New Year we went to Ryan's house.  Ron entered by the back door but on leaving he used the front door which requires you to bend low under the beam and step up.  So another achievement.

Our trip to Llangollen, North Wales started out by us leaving home at 10.30 ish on 30th, we stopped for lunch and a comfort break at around 12.15 on the A14 and soon after leaving the Little Chef traffic came to a standstill and there we sat for 2 hours!   We set off traffic moving slowly and by now it was beginning to get dark as it was a dull, rainy day.  Disaster struck the driver side windscreen wiper broke away, I pulled in at a lay-by and following Ron's instructions managed to push it back on.  Ron said it had never been satisfactory since he had it replaced.  We set off again and reached the M6 using the wiper only manually and intermittently.  Then it came off again and I could hardly see it was now completely dark and heavy rain all I could see were red lights again and no way of knowing if they are rear lights or stoplight .  We stopped again a couple of times to push it back on.  All in all a nightmare journey- all those intersections and you can't see the road markings.  We eventually arrived at out hotel at 7.15!!!!  Quick change in our very nice room and then down to dinner.

We had a very nice New Year Break enjoying the company of our friends and our return journey was completely trouble free.

Our friend Ted Kelly took us to Wrexham to buy a part and then fixed it for us.  According to a mechanic staying at the hotel, the one fitted on the car was not the correct one for the car.

I do feel quite proud of myself as I think I managed quite well.


We have the Physio from Papworth coming on Saurday and we heard today that we are booked in to Saffron Walden for another 8 week session (twice a week).  Ron has been able to improve the movement he has on his arm from elbow and this may be due to the exercises he has been doing since theOT came to visit.   He continues to practice his staggering without a stick but we had a bad freezing incident on the slope to the dining room this week, I am hoping the Neuro Psychologist will sort this out for him.


Ron has not yet driven using his conversion and I am not encouraging it.  I hope again the psychologist will be able to reassure me.


Must get on lots to do today.